Blood Cancer and Parent-Child Caregiving
Comparing the Psychosocial Needs and Experiences of Blood Cancer Family Caregivers when the Patient is the Child or Aging Parent
Funded by the Leukemia and Lymphoma Society (PI: Bylund)
UF Graduate Research Assistants: Amanda Kastrinos, Michaela Devyn Mullis, Easton Wollney
We are assisting Dr. Bylund with analyzing the qualitative data (interviews) that captured midlife family caregivers experiences caring for pediatric patients and geriatric patients, focusing on the unique caregiving needs in this parent-child caregiving bond at various points in the life span. Analyses include a focus on the diagnosis stories, the impact of developmental differences and life span experiences, caregiving transitions, and understanding the caregiving experience from family systems perspective. Analyses will help inform the development of an intervention.
Enhancing Parent-Child Caregiving Communication after a Child or Aging Parent is Diagnosed with a Blood Cancer: Development of an Intervention
Funded by the Leukemia and Lymphoma Society (PI: Bylund; co-I: Fisher)
UF Graduate Research Assistants: Amanda Kastrinos, Michaela Devyn Mullis, Easton Wollney
We will be conducting a nationwide survey of caregivers and developing an online healthy communication practice intervention to help adult child caregivers and their parents with blood cancers. Bylund is principal investigator. Fisher is co-investigator with Jason Arnold, director of the E-Learning, Technology and Communication Service in the UF College of Education. They will begin conducting the study in July 2019.